Optimising cohort data in Europe

Component Resource and resource type

Capability

Aggregation capabilities (integration): − Linking various existing knowledge translation frameworks in a consistent way. Combinative capabilities: − Implementing new combination of existing knowledge frameworks. Appropriability and transferability capabilities (integration): − Creating metrics for identifying investment return from data uses efforts.

Sustainable data re-use mechanisms (quantitative measures of data use benefits)

Social value: tangible, specialised and quantifiable resource, includes resource immobility problems.

4. Pillar III: Inclusion - Participatory collaboration and knowledge exchange The proposed participatory collaboration and knowledge exchange platform shall be a democratic forum for stakeholders for discussion, to express sound opinions and positions, and to find corresponding information. As such, it is a pivotal element in fostering trust in the research institutions and the research itself. Pillar III does no longer need to convert intangible resources into tangible ones (cf. Pillar II). Instead, it relies on the complementarity of intangible and tangible specialised resources for setting knowledge and collaboration exchange. The components of Pillar III (Inclusion) are as follows: 1) list of available software for federated analysis and data integration structures, 2) dialogues between developers of systems and end-users, 3) sustainability and training, 4) hybrid queries structure for databases, 5) data sharing platforms, and 6) benefit-sharing platforms and community engagement. In order to illustrate the use of both tangible and intangible resources in parallel, we will focus on data-sharing platforms and benefit-sharing platforms respectively. A crucial point for understanding the resources needed for a data-sharing platform cannot rely on automatic query systems alone. Namely, sharing data warrants compliance to the specific requirements of the cohorts and thus requires the creation of versatile tangible resources. More precisely, an overview of the state of the art of national initiatives helps to determine what kind of data-sharing strategies for queries are needed. Combinative capabilities can be used to create a state of the art of national initiatives and project collaborative research initiatives. This will allow identifying bottlenecks and practices of the current initiatives. Alternatively, combinative capabilities and knowledge aggregation capabilities can be used to integrate existing cohorts (with owners’ agreement). This will allow identifying the real challenges and facilitators in practice and uncovering unexpected problems.