Optimising cohort data in Europe

Index Chapter 1: SYNCHROS (SYNergies for Cohorts in Health: integrating the Role of all Stakeholders)

1. Background

2. Objectives

3. The role of stakeholders

4. Concluding remarks

Chapter 2: Methodological considerations for optimising the exploitation of cohort data in Europe

1. Introduction

2. Cohort data harmonisation and integration

3. Main methodological challenges

4. Best practices, solutions and implications for implementation

Chapter 3: Ethical and legal considerations for optimising the exploitation of cohort data in Europe

1. Introduction

2. Domain-related challenges to cohort research

3. Best practices, solutions and implications for implementation

Chapter 4: New data collection technologies: state-of-the art and impact on cohort research

1. Introduction

2. State-of-the-art

3. Ethical and legal considerations

4. Best practices, solutions and implications for implementation

Chapter 5: Strategic agenda for optimising cohort data exploitation in Europe

1. Introduction: Resources and Capabilities for an “Institute for Multi-study Optimising Integrative Cohort Research in Health”

2. Pillar I: Standards- Standards for variables, minimal set of variables

3. Pillar II: Guidance- Guidelines of harmonised legal, ethical and organisational conditions for access

4. Pillar III: Inclusion- Participatory collaboration and knowledge exchange

5. Strategic Agenda

6. Conclusions