Optimising cohort data in Europe

Stakeholder category

Main motivation for engagement. They…

… have experience/knowledge in cohort harmonisation and can identify main methodological issues and can provide information on the current-state-of-the-art, best practices and potential solutions. … can identify main ethical issues related to data sharing and harmonisation, and provide information on the current-state of-the-art, best practices and potential solutions. … can identify main legal issues related to data sharing and harmonisation, and provide information on the current-state of-the-art, best practices and potential solutions. … have high-level experience/knowledge in cohort harmonisation and can identify main issues (either methodological, practical, legal or ethical), provide information on the current-state-of-the-art, best practices and potential solutions, and can give the consortium direction about next steps. … have experience/knowledge in aspects related to data management at national or international level, and can provide information on systems, services and organisation. … may have an interest in optimising Return-On-Investment (ROI) by implementing or funding the implementation of SYNCHROS’ recommendations, and can inform about relevant ongoing initiatives and projects. … are funding the SYNCHROS project, may have an interest in optimising Return-On-Investment (ROI) by implementing or funding the implementation of SYNCHROS’ recommendations, and can inform about relevant ongoing initiatives and projects. … might have a mutual interest; can learn from SYNCHROS findings and SYNCHROS can learn from their projects, findings and, for instance, working groups on specific topics related to cohort data harmonisation such as Research Data Alliance’s Working Group on Metadata Standards Directory. … might have a mutual interest; can learn from SYNCHROS’ findings and SYNCHROS can learn from their project findings. … may have an interest in optimising ROI by implementing or funding the implementation of SYNCHROS’ recommendations.

Experts on methodological aspects related to cohort harmonisation Experts on ethical aspects related to cohort harmonisation Experts on legal aspects related to cohort harmonisation

External Advisory Boards

Research Infrastructures

Funding agencies

European Commission, e.g. EU Policy-makers

International Networks, Associations or Organisations

Related H2020 projects

European Parliament