Optimising cohort data in Europe

moral because stakeholder participation is translated as a more democratic process that could strengthen the legitimacy of decisions and policies; and content because the heterogeneity of stakeholders implies confrontation of insights, interests and forms of knowledge that could incorporate elements such as equality, power and justice into the policy. The approaches for stakeholder engagement with emphasis on implementation are shown in Table 3.

Table 3. Stakeholder approaches during the phase of evidence-informed policy-making

Level of engagement

Approach

Who

Activities

Products

− SYNCHROS cohort repository − Report on

harmonisation and integration methods

− Cohort and

− Academics − PIs of cohort studies − Coordinators of harmonisation initiatives − Research infrastructures

− Report on ethical

harmonisation initiatives landscape mapping − Review studies − Inventory of research infrastructures

guideline proposals − Report on standards for improving future cohort data − Report on strategic agenda for better coordination of cohort globally − Report on the recommended sustainability model − Peer-reviewed publications − Newsletters − Project website − Social media − SYNCHROS leaflets − Exploitation of project results − Further activities in research and development − Potential future collaborations

One-way communication: Stakeholder to SYNCHROS

Monitor

One-way communication: SYNCHROS to stakeholder, there is no invitation to reply

− Dissemination and communication activities

− All stakeholder categories

Inform

− Presentations at conferences − Meetings with stakeholders

One-way communication: SYNCHROS to stakeholder

− All stakeholder categories

Advocate