Optimising cohort data in Europe

Level of engagement

Approach

Who

Activities

Products

Limited two-way engagement:

− Stakeholder identification − Alignment of

setting and monitoring performance according to terms of contract

− European

− Meetings

Transact

Commission

expectations on project outcomes

− Report on stakeholder meetings − Report on stakeholder outcomes − Standards for improving future cohort data − Strategic agenda for better coordination of cohorts globally

Limited two-way engagement: discuss a specific issue

− Policy makers − Key

− Stakeholder dialogues

Negotiate

or range of issues with the objective of reaching consensus

stakeholders in the position to implement

4. Concluding remarks Over the course of the project, stakeholder engagement showed to be an essential mechanism to ensure the relevance of knowledge and outputs generated by SYNCHROS. The topics covered through the engagement activities, in the stakeholder consultations and dialogues, provided a comprehensive overview of the challenges and solutions when it comes to health-related cohort data harmonisation. Thanks to the active participation of many external stakeholders, these engagement activities provided an excellent source of knowledge, enabling a better understanding of the context for implementation and clarifying the current barriers and windows of opportunities. All engagement activities were a source of inspiration and strengthened the consortium’s aspiration for improved coordination of cohorts. The planned activities had each a tailored approach to ensure that the (level of) engagement best met the stakeholders’ needs. Based on the large number of entities involved in the different stakeholder categories, the SYNCHROS consortium is confident that all relevant stakeholder categories were offered the opportunity to become involved in the development of a sustainable European strategy for enhanced coordination and optimal exploitation of health-related cohort data.