Optimising cohort data in Europe

Hunter RF, Gough A, O’Kane N, McKeown G, Fitzpatrick A, Walker T, McKinley M, Lee M, Kee F. Ethical Issues in Social Media Research for Public Health. American Journal of Public Health 2018 Mar;108(3):343-348. https://doi.org/10.2105/ajph.2017.304249 Izmailova ES, Wagner JA, Perakslis ED. Wearable devices in clinical trials: Hype and hypothesis. Clinical Pharmacology and Therapeutics 2018;104(1):42-52. https://doi. org/10.1002/cpt.966 Janeček V. Ownership of personal data in the Internet of Things. Computer Law & Security Review 2018;34(5):1039-1052. https://doi.org/10.1016/j.clsr.2018.04.007 Keusch F, Struminskaya B, Antoun C, Couper MP, Kreuter F. Willingness to Participate in Passive Mobile Data Collection. Public Opinion Quarterly 2019 Jul;83(Suppl 1):210 235. https://doi.org/10.1093/poq/nfz007 Khazaal Y, Chatton A, Bouvard A, Khiari H, Achab S, Zullino D. Internet poker websites and pathological gambling prevention policy. Journal of Gambling Studies 2013 Mar;29(1):51-9. https://doi.org/10.1007/s10899-011-9288-3 Liang H, Zhu JHH. Big data, collection of (social media harvesting). In: The International Encyclopedia of Communication Research Methods. https://doi. org/10.1002/9781118901731.iecrm0015 Maher NA, Senders JT, Hulsbergen AFC, Lamba N, Parker M, Onnela JP, Bredenoord AL, Smith TR, Broekman MLD. Passive data collection and use in healthcare: A systematic review of ethical issues. International Journal of Medical Informatics 2019 Sep;129:242-247. https://doi.org/10.1016/j.ijmedinf.2019.06.015 Martinez-MartinN, Kreitmair K. Ethical issues for direct-to-consumer digital psychotherapy apps: addressing accountability, data protection, and consent. JMIR Mental Health 2018;5(2):e32. https://doi.org/10.2196/mental.9423 Martinez-Martin N, Insel TR, Dagum P, Greely HT, Cho MK. Data mining for health: staking out the ethical territory of digital phenotyping. NPJ Digital Medicine 2018;1:68. https://doi.org/10.1038/s41746-018-0075-8 Megget K. GPS for your health. Available online: https://www.chemistryworld.com/ features/gps-for-your-health/1010043.article (accessed June 14, 2022). Merchant RM, Lurie N. Social media and emergency preparedness in response to novel coronavirus. JAMA 2020;323(20):2011-2012. https://doi.org/10.1001/ jama.2020.4469 Merolli M, Gray K, Martin-Sanchez F. Health outcomes and related effects of using social media in chronic disease management: a literature review and analysis of affordances. Journal of Biomedical Informatics 2013 Dec;46(6):957-69. https://doi.org/10.1016/j. jbi.2013.04.010 Mobile Economy. Available online: https://www.neowin.net/news/study-accounts-for five-billion-mobile-users-by-mid-2017/ (accessed July 1, 2022).