Optimising cohort data in Europe

Nebeker C, Torous J, Bartlett Ellis RJ. Building the case for actionable ethics in digital health research supported by artificial intelligence. BMC Medicine 2019;17(1):137. https://doi/org/10.1186/s12916-019-1377-7 Nelson BW, Allen NB. Extending the Passive-Sensing Toolbox: Using Smart-Home Technology in Psychological Science. Perspectives on Psychologocal Science 2018 Nov;13(6):718-733. https://doi.org/10.1177/1745691618776008 Nolte MT, Shauver MJ, Chung KC. Analysis of four recruitment methods for obtaining normative data through a Web-based questionnaire: a pilot study. Hand (N Y) 2015;10(3):529-534. https://doi.org/10.1007/s11552-014-9730-y Olteanu A, Castillo C, Diaz F, Kıcıman E. Social data: Biases, methodological pitfalls, and ethical boundaries. Frontiers in Big Data 2019;2:13. https://doi.org/10.3389/ fdata.2019.00013 Price WN 2nd, Cohen IG. Privacy in the age of medical big data. Nature Medicine 2019;25(1):37-43. https://doi.org/10.1038/s41591-018-0272-7 Ranger S. Why your smartwatch and wearable devices are the next big privacy nightmare? Available online: https://www.zdnet.com/article/smartwatch-data-collection-rush raises-privacy-backlash-fears/ (accessed June 13, 2022) Resnik DB. Citizen Scientists as Human Subjects: Ethical Issues. Citizen Science: Theory and Practice 2019;4(1):11. http://doi.org/10.5334/cstp.150 Rose-Redwood RS. Governmentality, Geography, and the Geo-Coded World. Progress in HumanGeography 2006;30(4):469–86.https://doi.org/10.1191/0309132506ph619oa Segura Anaya LH, Alsadoon A, Costadopoulos N, Prasad PWC. Ethical Implications of User Perceptions of Wearable Devices. Science and Engineering Ethics 2018 Feb;24(1):1 28. https://doi.org/10.1007/s11948-017-9872-8 Solove DJ. Privacy Self-Management and the Consent Dilemma (November 4, 2012). 126 Harvard Law Review 1880 (2013), GWU Legal Studies Research Paper No. 2012-141, GWU Law School Public Law Research Paper No. 2012-141, Available at SSRN: http:// ssrn.com/abstract=2171018 (accessed July 1, 2022). Taylor J, Pagliari C. Mining social media data: How are research sponsors and researchers addressing the ethical challenges? Research Ethics 2018;14(2):1-39. https://doi. org/10.1177%2F1747016117738559 Tene O, Polonetsky J. Big data for all: Privacy and user control in the age of analytics. Northwestern Journal of Technology & Intellectual Property 2013;239. Vayena E, Blasimme A, Cohen IG. Machine learning in medicine: Addressing ethical challenges. PLoS Medicine 2018 Nov 6;15(11):e1002689. https://doi.org/10.1371/ journal.pmed.1002689 Viana J, Vasco Santos J, Neiva RM, Souza J, Duarte L, Teodoro AC, et al. Remote sensing in human health: A 10-year bibliometric analysis. Remote Sens (Basel) 2017;9:1225. https://doi.org/10.3390/rs9121225