Optimising cohort data in Europe

Strategic agenda for optimising cohort data exploitation in Europe

Anastassja Sialm, Ellen Vorstenbosch, Laura Fincias, Carla Sabariego, Jivko Stoyanov, Andreas Weser, Jerome Bickenbach and Josep Maria Haro

1. Introduction: Resources and capabilities for an “Institute for Multi-study Optimising Integrative Cohort Research in Health” 1.1. Theoretical background: leveraging Resources and Capabilities 1.2. Analytical approach: Stakeholder consultations, Resources and Capabilities analysis and Strategic Agenda 2. Pillar I: Standards- standards for variables, minimal set of variables 3. Pillar II: Guidance- Guidelines of harmonised legal, ethical and organisational conditions for access 4. Pillar III: Inclusion- Participatory collaboration and knowledge exchange 5. Strategic Agenda 5.1. Overview 5.2. Strategic tasks

5.2.1. Pillar I: Standards – Initial Strategic Tasks 5.2.2. Pillar II: Guidance- Initial Strategic Tasks 5.2.3. Pillar III: Inclusion- Initial Strategic Tasks

6. Conclusions References